Fighting against fowler's

So once again I'm laid I'm bed unable to sleep due to pain and the nob head of neighbour below me banging doors and shouting to someone I have got a new flat just waiting to move in which I will be so glad about. Not been able to sleep is horrible is horrible you just go round and round in circles you ask for help they give you a leaflet about how to relax but when you have a 5mm tube Sticking out of you and pain it's not easy to relax. They say don't go on your phone or watch anything but if I lay in bed and do nothing I go crazy I hate silence so a few things I do are 1. Read 2. Do my blog 3.look at kitting patterns 4. Funny jokes and photos are always a great way to relax 5. Think of ideas to talk about on the blog 6. Do puzzles Everyone had there own thing to help them relax I tend to do a lot of thinking at night time and always come up with great craft ideas at night ( normally by morning I have forgot lol ) just wanted to let people know there not alone if...

Ok so I have been talking about what I want to talk about now I want to know if there are any subjects anyone else would like me to talk about not just people with fowlers but others who want to know what a certain part is like so please comment any subjects you would like me to cover All my love tia xxxx

So today I went out with a friend for breakfast which was a all you can eat and it was amazing we sat there drinking tea an coffee just having a really good chat which I really needed we talked about everything even helped me with some ideas with my blog then we went to home bargins as I am moving to want some nice new things for our new place she also helped me with wallpaper as I have never decorated in my life so I was very great full for this she is such and amazing women she's been there for me so much in the past 1 and a half its the small little things like going for coffee and have a good chat and that changes your whole mood and makes me feel so much better so I just wanted to let you know we do have good days they may not me all the time but when we do have them they are even more special Keep an eye out for the next entry xxxx

so us fowler's girls know all about antibiotics but i will quickly explain them to you so antibiotics are used to treat or prevent some types of bacterial infections they work by killing bacteria or preventing them from reproducing and spreading. since January 2016 i have had 43 lots of antibiotics i seem to have infection after infection which have a suprapubic catheter doesn't help as you risk for infection is higher with a catheter and then i have been having utis since being 3 years old so i I am very prone to infections 9 times out of 10 I leave my gp with a prescription for antibiotics every time   i go  and let's face it to many antibiotics really are not good for us they have horrible side effects yes we need to take them but many times iv been to the gp they have tested my pee and say I have a infection so give me antibiotics and then when I phone for my results it's clear so I ha taken a good few days of antibiotics for nothing thus has happened so many t...

So this blog is about how to loose friends when you have a chronic illness. to be honest before i got more ill i never really liked going out much i preferred to stay in with my knitting and watch some movies. on the rare days i do go out i do struggle and i push my self to keep going for a few reasons. 1. to get me out of the house so i don't go even more crazy 2. to see friends and some family 3. to create memories that i can think about on a bad day a lot of people think i am lazy and that i just cant be bothered  but this isnt true yes i dont go out much but this is due to a number of things like ( pain ) im not overreacting i am in about 90% of the time this is no joke my pain can varey from a mild ache to i cant get out of bed recently its been more of i cant get out of bed i try not to let pain stop me from doing things but its very hard with a suprapubic catheter the stoma is a few intches above the belly button and there is a thick tube that goes in to the stoma to g...

So going out for lunch is so easy for loads of people but people with chronic illness is so much hard work with getting ready making sure you have your medication for the pain and make sure you have everything you might need for your catheter for if it leaks which happens way to much and to find comfortable clothes that you won't feel to uncomfortable in and trousers you can have your leg bag on So I'm off for lunch Talk soon

Talking about uncomfortable things fightingagainstfowlers 28m ago So moat of us are scared to tell people how we really feel o know I am and with a chronic illness it’s even harder especially with such a degrading illness like fowlers syndrome we have no privacy or dignity with the hospital trips and district nurses but we can’t be afraid of what someone might think it’s our body our life we can do what we want and if people don’t like it then your better off without them Visit hello fightingagainstfowlers Aug 11, 2016 so this is my first post just want to say hello and introduce my self i am 23 called tia i live in glasgow moved here 6 years ago from sheffield my mum younger brother and two younger sisters and step dad are still in sheffield my dad has recently moved up to glasgow to be near me which helps so much with me been poorly. i love with my partner stephen and we have 2 cats cleo and miko stephen is my life line i would be buggered without hi...

hi everyone i am a 23 year old women suffering with fowlers syndrome i have a suprapubic catheter and my goal is to tell the world all about fowlers syndrome and to explain whats its like living with this rare illness at such a young age this will be a very detailed blog on medical nature I will be explaining wjat it's like to love with fowlers-syndrome this is a very rare condition that only effects women please feel free to share this blog  Thank you  Tia  Xxxx