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Showing posts from January, 2017

the word FAILED

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hi guys so i haven't siad a word since my sns trail so on the 18th of January i had my sacral nerve stimulation device fitted outside of my body i have photos which will be added it was a very long day with a 5am start then traveling across Glasgow i had sedation in theater and i am not going to lie i cried the whole procedure it was awful but i got through it i had some sensation in my lower back kind of like a tapping sensation around the tail bone area nothing to painful but a very sore and stiff back from lots of needle sticks trying to get the wires is so i was sent home to let the wires do there work herre are some photos from the day on the 25th of january my urology nurse phoned who deals with the sns wires like the remote and wires ad battery we had a talk and after no passing urine and no sensation in my bladder i was told the trial had failed im not going to lie my heart broke it hit me like a brick wall i was out in town with a friend at a classic car show and ...

a waiting game

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so we have all been there waiting and waiting for a hospital appointment to come through for treatment meIi feel like im stalking the postman every time something gets put through the letter box run to the door but then when it donst come we start to think it will never come and it will never happen. than you get a phone call asking if you can come in the net day for the treatment and bang it hits us like a brick wall we dont know what to feel. we want to cry, scream, laught and hide and then we think this could be the best thing ever and pray this is the new start you have been hoping for. So tomorrow I am going in for my sns trail ( sacral nerve stimulation ) which will hopefully make me pee again all on my own I am not going to lie I am terrified mainly about it not working but I'm hopeful  I will be having thin wires placed into my back near my tailbone which will be connected to an external battery for 2 weeks and this will send small simulatio...