a waiting game

-
so we have all been there waiting and waiting for a hospital appointment to come through for treatment

meIi feel like im stalking the postman every time something gets put through the letter box run to the door but then when it donst come we start to think it will never come and it will never happen.

than you get a phone call asking if you can come in the net day for the treatment and bang it hits us like a brick wall we dont know what to feel.

we want to cry, scream, laught and hide and then we think this could be the best thing ever and pray this is the new start you have been hoping for.

So tomorrow I am going in for my sns trail ( sacral nerve stimulation ) which will hopefully make me pee again all on my own I am not going to lie I am terrified mainly about it not working but I'm hopeful  I will be having thin wires placed into my back near my tailbone which will be connected to an external battery for 2 weeks and this will send small simulation to my sacral nerves this will be temporary and if it works well i will have a permanent one fitted  so for the next 2 weeks things wills slow down as i wont be able to do much after so i dont move the wires so please wish me good luck and i will let you all know how im doing

here is some photo of what sns looks like

all my love
tia

Comments

Post a Comment

Popular posts from this blog

my story so far

-
Image
In 2015 I was admitted to hospital with a kidney infection which I have suffered from since been 3 years old I was born with bilateral so kidney reflux so utis and kidney infections where a big part of my childhood and lots of time in hospital  So in 2015 I was in hospital on iv antibiotics and all of a sudden I was unable to pass any urine or just a little dribble after two days of this it got to the point where I had 2 liters in my bladder so while I was in I was taught to do intermittent self catheterisation which was extremely painful and difficult to pass the catheter after a week in hospital I was sent home doing ISC while I waited to have some tests  But after about 6 months it got to the stage where I couldn't pass the intermittent catheter at all and was in and out with infections needing iv antibiotics I then got fitted with a urethral catheter which was just 10 times worse and the pain was so bad I wasn't sleeping and yeah be night the pain was so sever ...
Read more

A lots been happening

-
Image
So it's been a while since my last post I have had so much happen on the 15th March 2017 I had my second sacral nerve stimulation trail which was a awful experience the anestatis decided to give me hardly any sedation so I felt and was aware of every thing it was extremely painful they had to give me gas and air in theater but didn't work and because of all this they could only get 1 wire I'm my back is extremely sore and brused I go back on the 3rd of April to get it taken out urology nurse has siad it's nit looking to good. 17th March I saw my other urologist to see if they can do anything about my infections and other possibilities if this sns dosnt work he basically siad nothing will stop the infections and if the sns dosnt work it's a catheter for life this didn't go down to well it's really hit me heard there is no way I can spend the rest if my life with a suprapubic catheter he also siad I should talk to my other urologist about a urostomy ...
Read more

why am i waiting

-
Image
so a lot has happened since the last post I have been in a very dark place and I'm not going to lie I feel like I'm hitting rock bottom so here is whats gone on. SATURDAY 7TH APRIL 2018 I woke up about 9am with such awful stomach pains in my bladder I looked at my night bag and was hardly anything in it. My heart felt like it skipped a beat because I knew my catheter was blocked so I tried to flush it several times and nothing moved so we got the nurses out at this point my anxiety is reaching breakpoint I panic even scheduled changes because I knew how much it will hurt the nurses had me on my back flat on my side and stood up but still wouldn't come out the pain just from the nurses pulling was so bad I was nearly sick a few times. Anyway, the nurses had to stop because of the pain and they didn't want to keep pulling without better pain relief I wanted to knock my self out at this point so they sent me to A and E and now I'm freaking big...
Read more