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Showing posts from June, 2017

THE TRUTH OF LIVING WITH A CATHETER ( part 2 )

so to carry on  from part one of the truth of living with a catheter. INFECTIONS any person can get a uti or a kidney infection but for someone with a long term catheter the infection rate dramatically rises and for someone like me who has had chronic infections from the age of 3 years old having a long term catheter makes things 10 times worse. i am at my doctors pretty much at least once a week for antibiotics and then times i end up in hospital for iv antibiotics because my body cant fight the infections with oral antibiotics a lot of fowlers girl have had uro sepsis due to sever infections not clearing up. some of us unlucky ones just like me are very rarely infection free in the past 6 months i have had 35 lots of antibiotics so thats a little about infections not to mention site infections in our skin around the stoma which is very painful and can turn nasty if not treated.site infections are very common with suprapubic catheters due to the location. this is such a...

THE TRUTH OF LIVING WITH A CATHETER ( part 1 )

so living with a suprapubic catheter isn't as easy and simple as you think. yes, it is basically saving our lives but sadly it comes with its own problems and for a lot of us fowlers girls it effects our daily life. it stops us doing the things we love like going for a walk, going out with a friend or simply just getting up and getting dressed. so I'm going to tell you some of the problems you have to deal with when you have a suprapubic catheter. CATHETER CHANGES Catheter changes for a few are pain-free but for unlucky ones like me, they are extremely painful. some of us have to have them changed under general anesthetic/sedation and gas and air for me I have to have a high dose of diazepam and lots of morphine before mine. the catheters can sometimes get stuck like mine and they basically need to be yanked out and I'm gonna say this really ***** hurts and leaves me stuck in bed for hours to days the changes also set the bladder into spasms we often get bladder ...

WHAT IS FOWLERS SYNDROME

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so iv been doing this blog for a while now and it came to me i actually havnt explained what fowlers syndrome is so in this blog i will do my best to tell you. fowlers syndrome was first recognized by professor clare fowlers in 1985 until 1985 women in urinary retention was just thought to be hysterical . so fowlers syndrome effects women in their 20s and 30s usually. who infrequently  pass urine with an intermittent stream or for some like me full urinary retention. normally when your bladder starts getting full you get the sensation to go to the toilet but a women with fowlers syndrome have little to no sensation of a full bladder and for me its no sensation in my blaader at all i havnt passed a drop in over 2 years.                                            ...