Fighting against fowler's

So most of us love Christmas and the build up to it we look forward to spending time with family creating memories presents the food and seeing our family just smile. But been chronically ill at Christmas we dread chrostmas day we worry so much that we will let people down instead of looking forward to all the things above we dead and pray that we have the strength to get out of bed on Christmas day we pray we won't be in to much to enjoy our self's and spend time with family and friends. And the one thing we pray most for is not to end up in hospital or bed bound yes it's only one day but it takes so much strength and energy to just get up and get ready I only went to the pub for Christmas dinner and I was exhausted from it from the pain the sitting yes it was worth it but I was paying for it. We put a smile on our faces and day we are fine because we don't want to ruin our family's day we want them to be happy. We just want to feel normal and enjoy this on...

So there isn't long till I fond out if I need a hysterectomy and to be honest I'm not feeling sny better about it at the moment I'm just going to go in woth a open mind and see what is siad all I know is its going to be a extremely difficult day and with this time of year it really dosnt make it any easier harder if anything everyone getting ready for christmas with their family and children but it's just ment to be a suppose I will keep you all up to date at the moment I'm suffering from a God awful  uti so pleof rest for me 

This really has taken me a lot of guts to post this so please share as much as possible to tell everyone about this horrible condition and no matter what age you are you can have poor health So I want to tell you a bit more about me and my life fowler’s syndrome is just a part of what else is going on in my life right now. I have always had problems with my periods since I started them with heavy bleeding and horrible pain which at one point I would have to be admitted to hospital for pain relief every month. It came to the point where I had to have injections that induce a fake menopause to stop the bleeding and pain and this did work for a while but the side effects of the injections were horrible hot flushes , mood swings and just feeling awful and not like a women at all. The  in 2015 I started the injections again and this time I just kept bleeding so my gynaecologist decided to do exploratory surgery to see what was going on and to rule out endometriosis and to do a t...

im going to tell you about a good day then a bad day you will be able to tell they are very differnt.   a good day with fowlers  I can get up before 11am  i can get dressed i can change my dressing and clean my site on my own i can do things in my house  i can cook meals i can change a bad  i can leave the house i only have to take a few painkillers i can get in the shower on my own i can go for a walk i can spend a few hours out of the house i can go for lunch with a friend  i can feel like a girlfriend  i  can get comfy in bed and sleep i feel pretty  i feel mentally normal  a bad day with fowlers i struggle to get up before 11 am i dont get out of my pjs i need help changing my dressing and cleaning the site i struggle to do more then 2 things in the house i cant get out of bed i cant get off the sofa i dont leave the house i am constantly taking medication i end up in hospital i need help getting ...

So like a lot of people with fowlers I am on lots of medication I have a clothes draw full off the stuff. A lot of people go oh just go to the doctor and get some antibiotics then you will be all better but believe it or not most of my medications make me feel so poorly with side effects like neasua , vomiting , dry mouth, constipation and insomnia and that's just to me ton the nicer side effects. Being on medication won't make us better over night and it may never make us better but it can help us feel more comfortable or stop us from dying and I'm not being over dramatic a few months ago I had a usual uti and over 3 or 4 days that turned into a kidney infection which then lead to sepsis I had no idea I had sepsis till I got to the hospital and was nearly admitted to hdu with a stupidly hight heart rate I got pumped full of medication through a iv and it did get very scary at one point it was messing with my blood pressure I kept vomiting I felt like death warmed up and...

Ok guys so iv not done a posy in a while as you know I moved which really took it out of me I had infection after infection the  a chest infection the shingles it was never ending iv not been sleeping much at all so ov ended up on sleeping tablets which I really didn't want to happen but I really needed to sleep just a few hours Had loads of other things going on which I'm it ready to talk about yet in till I know what's going to happen I am going to start doing more posts soon once I'm more mental able to We are settling in very nice in to our new home and my furbabies love it so much it's so quiet and relaxing here and great views Also wandered if anyone is reading this blog and if it's worth keeping it going il decided if anyone comments as I don't know if it's doing any good  at all Il leave it there for now Xxxxxx

ok so this will be my last blog for a while for those of you that dont know im moving to a new flat which will be better for my health and as my fellow folwers girls know moving home with fowlers is not a easy thing to do. so people say to me dont you be doing to much and tiring your self out but there is no way i am sitting back and just letting my partner do all the work its not just me in this illness its my amazing other half just as much as me hes the one that has to come to the out of hours with me or sit in a and e for hours while i lay in a bed. he goes to all my doctor appointments with me my chemist know him just as much as they know me. so yes i understand people dont want me doing much but i cant just sit and watch my partner tire his self out to hes such an amazing guy he puts up with everything he says im a great girlfriend but honestly im not im in pain most days so cant do much at all but he puts up with it all and tells me he loves me every single day i really am b...