IMPORTANT POST not just fowlers syndrome

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This really has taken me a lot of guts to post this so please share as much as possible to tell everyone about this horrible condition and no matter what age you are you can have poor health


So I want to tell you a bit more about me and my life fowler’s syndrome is just a part of what else is going on in my life right now.

I have always had problems with my periods since I started them with heavy bleeding and horrible pain which at one point I would have to be admitted to hospital for pain relief every month. It came to the point where I had to have injections that induce a fake menopause to stop the bleeding and pain and this did work for a while but the side effects of the injections were horrible hot flushes , mood swings and just feeling awful and not like a women at all.
The  in 2015 I started the injections again and this time I just kept bleeding so my gynaecologist decided to do exploratory surgery to see what was going on and to rule out endometriosis and to do a test on my tubes to see if they were blocked as me and my partner had been trying for a baby for around about a year at this point so after my surgery my consultant told me my tubes were clear so I didn’t need ivf there was no endometriosis he removed 2 cyst off my ovaries which was normal due to me having pcos he also found sever scar tissue in my pelvis so he freed as much as he could and said I should hopefully be able to get pregnant but things didn’t happen then fowlers started to get worse and I needed a suprapubic catheter you can carry a baby with a suprapubic catheter so I was happy with this but we decided to stop trying till I got my health sorted.

So not in December 2016 I am now having to make the choice of carry on been in a lot of pain which leaves me in bed for days and days also unpredictable bleeding and sever heavy bleeding or get a hysterectomy due to all my health problems my gp thinks it’s the only option left for me as I have tried all other options and medications. Any treatment I try next will leave me infertile

But at 23 years old trying to decided if you want a hysterectomy or not is not a easy thing yes you can adopt or have a surrogate but it’s different you want to feel your baby growing inside of you. People say oh no you don’t want to go through  labour it’s painful but when you say that to a women that having a family is her dream she wants to feel the pain she wants to feel every part of it the good and the bad because at the end of it she would have her little baby in her arms.

This is a very hard time for me and writing this and telling everyone is really hard I’m sat writing this and my heart is all over and the reason I’m writing this is to tell everyone it’s not just one thing fowlers creates a whole bunch of problems
So yes there is a 90% I will be having a hysterectomy and people who truly know me will know this was not a easy decision for me to make well not just me but Stephen to
And I couldn’t get through any of this without my friend and family I am so great full to them for all there help sadly it’s got to be my decision

So please don’t say don’t worry you will be next and you have other options and miracles happen I know this but it doesn’t make my decision any easier
 Thank you xxxxxxx

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