the word FAILED

-
hi guys so i haven't siad a word since my sns trail so on the 18th of January i had my sacral nerve stimulation device fitted outside of my body i have photos which will be added it was a very long day with a 5am start then traveling across Glasgow i had sedation in theater and i am not going to lie i cried the whole procedure it was awful but i got through it

i had some sensation in my lower back kind of like a tapping sensation around the tail bone area nothing to painful but a very sore and stiff back from lots of needle sticks trying to get the wires is so i was sent home to let the wires do there work


herre are some photos from the day

on the 25th of january my urology nurse phoned who deals with the sns wires like the remote and wires ad battery we had a talk and after no passing urine and no sensation in my bladder i was told the trial had failed im not going to lie my heart broke it hit me like a brick wall i was out in town with a friend at a classic car show and i just cryed trying to hide my heart break i was given a 10 to 20 % of the sns working and i guess it wasnt my turn for this to work so now i have to wait till the 6th of febuary when i go back to tal about what is next for me and i have to tell you i am scared but hoping there are other things othere than major surgery so please send me all your prays


thats all for now guy il keep you updated once i know

keep sharing as you may let someone you know who has bladder problems there not alone

all my love
tia xxx

Comments

Post a Comment

Popular posts from this blog

When your body screws you

-
Image
      THE DAY MY BODY SCREWED ME So on Thursday the other of August 2009 I was admitted for a totally hysterectomy at 25 it was the hardest choice to do this as I have no children it was going to be done in the maternity hospital to which made it hurt so much more but I had to focus on getting some of my life back but sadly things went completely wrong Hi lovely people. Stephen updated but Tia’s profile page isn’t showing it, and mine hasn’t come up yet, updating here for those who are waiting for news. Taken directly from Stephens status “Just letting everyone know Tia Louise Castle didn't have the surgery. She went into anaphylaxis in theatre so the op was cancelled. She is currently need a lot of oxygen  My life got turned up side down they have me all the meds and sadly I went into full blown anaphylaxis shock and it caused a sever asthma attack my lungs flooded and I had to be shocked I came round and the first thing I noticed was...
Read more

my story so far

-
Image
In 2015 I was admitted to hospital with a kidney infection which I have suffered from since been 3 years old I was born with bilateral so kidney reflux so utis and kidney infections where a big part of my childhood and lots of time in hospital  So in 2015 I was in hospital on iv antibiotics and all of a sudden I was unable to pass any urine or just a little dribble after two days of this it got to the point where I had 2 liters in my bladder so while I was in I was taught to do intermittent self catheterisation which was extremely painful and difficult to pass the catheter after a week in hospital I was sent home doing ISC while I waited to have some tests  But after about 6 months it got to the stage where I couldn't pass the intermittent catheter at all and was in and out with infections needing iv antibiotics I then got fitted with a urethral catheter which was just 10 times worse and the pain was so bad I wasn't sleeping and yeah be night the pain was so sever ...
Read more

Some exciting news

-
Image
Some big big news !!!! So on the 29th of may I will be going in to my local hospital again to have a full radical hysterectomy as we had planned for last year but had a sever asthma attack and needed ICU and a ventilator for 12 hours After months of waiting and testing. I will be having  my total radical hysterectomy on the 29th of may terrified is not the word to describe how I am feeling it's going to be a massive recovery and a painful one at that So many things Are so scary my body is going to change so abruptly since I am having a total hysterectomy and a bilateral  salpingo oopherectomy I will have a surgically induced menopause I have had 3 synthetic menopases and they where so harsh on the body I have no idea how it will hit me till it does and these aren't like the synthetic menopases this scares me so much how much is it going to change need and my body I don't want to be moody it snappy all the time just hope hrt helps a lot I feel ...
Read more