A lots been happening
So it's been a while since my last post I have had so much happen on the
15th March 2017
I had my second sacral nerve stimulation trail which was a awful experience the anestatis decided to give me hardly any sedation so I felt and was aware of every thing it was extremely painful they had to give me gas and air in theater but didn't work and because of all this they could only get 1 wire I'm my back is extremely sore and brused I go back on the 3rd of April to get it taken out urology nurse has siad it's nit looking to good.
17th March
I saw my other urologist to see if they can do anything about my infections and other possibilities if this sns dosnt work he basically siad nothing will stop the infections and if the sns dosnt work it's a catheter for life this didn't go down to well it's really hit me heard there is no way I can spend the rest if my life with a suprapubic catheter he also siad I should talk to my other urologist about a urostomy he siad would I prefer a bag I siad yes because once I'm healed I may have a better chance if getting some if my life back so the last few days have been a bit of a blur.
18th March
It's my birthday and I can't do anything iv been in so much pain and trying to hide it from family so they have a nice day to ( although they knew u was in a lot of pain )
My cousin and her boyfriend came up from London as a suprise and it was lovely I just wish I could have done more with them and had more fun but with the news after Thursday iv not been in a great mood think I'm still trying to get my head around that I'm now only 24 and looking like I'm never going to get better
But we had breakfast at a carvery sadly didn't eat much but was nice visited a few shops but pain got to much and had to come home then at night we had a Chinese takeaway and watched a movie it was a nice day but could have been so much better just want to say thank you to my family for giving me a nice day
I will keep you all updated xxxx
15th March 2017
I had my second sacral nerve stimulation trail which was a awful experience the anestatis decided to give me hardly any sedation so I felt and was aware of every thing it was extremely painful they had to give me gas and air in theater but didn't work and because of all this they could only get 1 wire I'm my back is extremely sore and brused I go back on the 3rd of April to get it taken out urology nurse has siad it's nit looking to good.
17th March
I saw my other urologist to see if they can do anything about my infections and other possibilities if this sns dosnt work he basically siad nothing will stop the infections and if the sns dosnt work it's a catheter for life this didn't go down to well it's really hit me heard there is no way I can spend the rest if my life with a suprapubic catheter he also siad I should talk to my other urologist about a urostomy he siad would I prefer a bag I siad yes because once I'm healed I may have a better chance if getting some if my life back so the last few days have been a bit of a blur.
18th March
It's my birthday and I can't do anything iv been in so much pain and trying to hide it from family so they have a nice day to ( although they knew u was in a lot of pain )
My cousin and her boyfriend came up from London as a suprise and it was lovely I just wish I could have done more with them and had more fun but with the news after Thursday iv not been in a great mood think I'm still trying to get my head around that I'm now only 24 and looking like I'm never going to get better
But we had breakfast at a carvery sadly didn't eat much but was nice visited a few shops but pain got to much and had to come home then at night we had a Chinese takeaway and watched a movie it was a nice day but could have been so much better just want to say thank you to my family for giving me a nice day
Hi.. sorry to hear about the issues you are having I'm due to have the procedure done but haven't been given a high % it's going to work. For the 2 week tester did you have any problems with having it? an what pain do you get? as I also suffer with chronic fibromyalgia. X
ReplyDeleteHi I got given a very small chance of it working to I got a lot of pain with it but not everyone does every person is different I got a lot of back pain but a lot of people don't have any problems I just felt very uncomfortable with it but if it works it's worth it I hope it all goes worth well for you xxx
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