it's been a while

-
Hi everyone,


So it's been a while and here's why so bare with me 

In the 29th of May I went in for my 2nd attempt at a hysterectomy thankfully it all went smoothly I woke up to my Stephen my cousin Sarah and my daddy and it was just what I needed I was in a lot off pain it was extremely painful to get up and down 






     (After surgery while I was still out)

.            (When I finally woke up 
                  Enjoying the PCA)


I was in for 3 days was so happy to be home been in a maternity hospital when you have just had a hysterectomy and have no children is not nice icsoent a week with my cousin Sarah we watched movies all week we made me a  little bed on the sofa and my dad came round everyday to .

.                  (Family photo)

I was ok for a while then all of a sudden I was crying at everything. And nothing and hot flushes currently trying to find the right hrt I am struggling a lot right now with Christmas coming up I have always struggled with Christmas with my infertility so this Christmas is going to be a hard one I'm not sure how I'm going. To get through it it just hurts so much  so any support would be greatly appreciated anyway I have had my follow up and have been discharged from gynecology yay  

.                   (1 day post op )

.       ( At first looking at the scar 
                 Made me nauseous)

.            ( I know have a wonky belly                            button but healed 
                          So so well )

Right now on to the bladder well what can I say its a peice of shite that hates me still getting constant infections and hospital admissions.

I have been added to the list for a mitroffanof but I'm looking at a year and a half wait asbhesbthe only doctor around that does it so on rather upset about that as living with a catheter seems to be getting harder 

For some reason my night bags keots leaking and I was sick of getting out of bed and standing on a soggy carpet so Stephen came up with and idea a cat tray and my stand fits in it perfect so no more soggy carpet.

My Catheter changes are just as bad having themndone every 8 weeks but around 6 weeks my site gets ridiculously sensitive and painful really not sure I can do this every 8 weeks fir another year and a half 

.           (Catheter change time)


Well that's about it for now I'm just very low and sad right now once I have some more to say I will post another I won't leave it as long

Love tia

Comments

Post a Comment

Popular posts from this blog

my story so far

-
Image
In 2015 I was admitted to hospital with a kidney infection which I have suffered from since been 3 years old I was born with bilateral so kidney reflux so utis and kidney infections where a big part of my childhood and lots of time in hospital  So in 2015 I was in hospital on iv antibiotics and all of a sudden I was unable to pass any urine or just a little dribble after two days of this it got to the point where I had 2 liters in my bladder so while I was in I was taught to do intermittent self catheterisation which was extremely painful and difficult to pass the catheter after a week in hospital I was sent home doing ISC while I waited to have some tests  But after about 6 months it got to the stage where I couldn't pass the intermittent catheter at all and was in and out with infections needing iv antibiotics I then got fitted with a urethral catheter which was just 10 times worse and the pain was so bad I wasn't sleeping and yeah be night the pain was so sever ...
Read more

A lots been happening

-
Image
So it's been a while since my last post I have had so much happen on the 15th March 2017 I had my second sacral nerve stimulation trail which was a awful experience the anestatis decided to give me hardly any sedation so I felt and was aware of every thing it was extremely painful they had to give me gas and air in theater but didn't work and because of all this they could only get 1 wire I'm my back is extremely sore and brused I go back on the 3rd of April to get it taken out urology nurse has siad it's nit looking to good. 17th March I saw my other urologist to see if they can do anything about my infections and other possibilities if this sns dosnt work he basically siad nothing will stop the infections and if the sns dosnt work it's a catheter for life this didn't go down to well it's really hit me heard there is no way I can spend the rest if my life with a suprapubic catheter he also siad I should talk to my other urologist about a urostomy ...
Read more

why am i waiting

-
Image
so a lot has happened since the last post I have been in a very dark place and I'm not going to lie I feel like I'm hitting rock bottom so here is whats gone on. SATURDAY 7TH APRIL 2018 I woke up about 9am with such awful stomach pains in my bladder I looked at my night bag and was hardly anything in it. My heart felt like it skipped a beat because I knew my catheter was blocked so I tried to flush it several times and nothing moved so we got the nurses out at this point my anxiety is reaching breakpoint I panic even scheduled changes because I knew how much it will hurt the nurses had me on my back flat on my side and stood up but still wouldn't come out the pain just from the nurses pulling was so bad I was nearly sick a few times. Anyway, the nurses had to stop because of the pain and they didn't want to keep pulling without better pain relief I wanted to knock my self out at this point so they sent me to A and E and now I'm freaking big...
Read more